My name is Matt, I am 24 years old and I was diagnosed with Duchenne Muscular Dystrophy aged 6. I am writing this blog to describe some of what life is like with the condition and to talk some of the issues around Duchenne. I also want to talk about living as a disabled person. It is important to me to inform people about my condition but to also show others that having a disability should not limit your life.

Duchenne is a progressive muscle wasting disease, worsening over time. It is a rare form of muscular dystrophy that affects about 2,500 people in the UK.