There are a number of health issues associated with Duchenne that I feel could have been highlighted to me earlier or that would have been useful knowing about sooner. Finding out about the condition can be a scary prospect so is something I have never been particularly interested in. I haven’t often researched the potential long-term implications of Duchenne in detail, but it would have been good if some things were explained to me earlier by the health professionals I came into contact with. Some knowledge can go a long way in reducing some of the stress and confusion that comes with a new challenge.
Because of this, I want to give details about some of the issues I have come into contact with and offer my own advice. Hopefully it will give some welcome reassurance and a bit of information about Duchenne. Remember, each problem you face can be overcome and sorted out, so don’t ever feel too dejected! As my Mum often says, ‘one day at a time.’